About SCN8A Research Grants Program
Advancing Global Research for SCN8A-Related Disorders
SCN8A Research Grants Program is a global research funding initiative dedicated to accelerating the discovery and development of effective and safe treatments for individuals living with SCN8A-related disorders.
Born from the shared urgency of families, clinicians, and researchers worldwide, the program exists to bridge scientific innovation with real-world patient impact. Our mission is to catalyze high-quality, collaborative research that advances understanding of SCN8A biology and drives meaningful therapeutic progress.
Research Priorities
We prioritize research that is:
Scientifically rigorous
Patient-informed
Collaborative across institutions and borders
Positioned to accelerate therapeutic development
A Unified Effort
SCN8A Research Grants Program is made possible through a unique international partnership among patient advocacy organizations, research leaders, and community supporters.
The initiative is supported by collaboration between:
Together, these organizations represent a unified global community committed to advancing research through shared priorities, pooled resources, and coordinated strategy.
Approach to Research Funding
We fund research that aligns with clearly defined scientific priorities informed by caregivers, clinicians, researchers, and industry partners. By focusing on areas of highest unmet need and greatest opportunity, we aim to ensure that funded projects have the strongest potential for impact.
Our approach emphasizes:
Translational and preclinical research with therapeutic relevance
Thoughtful consideration of both seizure and non-seizure outcomes
Responsible innovation in gene-based and molecular therapies
Use of robust disease models and shared research resources
Collaboration & Community
Collaboration is central to everything we do.
We actively encourage applicants to:
Partner with existing SCN8A researchers
Leverage established disease models, datasets, and research tools
Share newly developed resources with the broader SCN8A research community
By fostering open collaboration and resource sharing, we aim to accelerate progress across the entire field—not just within individual projects.